School days

Deqlan has loved every moment of being back at school, every moment.



He is delighted to get out the car in the morning and doesnt even bug if i am there or if i have left - he is happy to give me my kiss goodbye and the hug i try grab before he runs off to play!



He also doesnt really want to go home when Nanna and i go to fetch him , there is just to much to do and enjoy at school!



Ayline has developed a programme and schedule just for Deqlan. Because we are so blessed that Deqlan has got the basics of the lessons down already, Ayline, takes "it up a notch" to challenge Deqlan and to teach him new things , but still around the subject of the week.



He is trying hard to write, and Ayline does many excercises with him in preparation for this big step. He even comes home and wants to practise the patterns he gets to do during the day! I was absolutely stunned to see that Deqlan can do a 1 , 2 and 3 without any assistance and can trace his name ! Its coming, its coming.....



Our little mathematician is counting to 110 , and growing every day



Deqlan also gets the chance to mingle with the "neuro typical " kids from Little Christian Village which is right next door. We are trusting that this is going to be great preparation for the big wide world, and most importantly to learn that he can have fun with other kids to, not just playing by himself and of course to learn how to share!





We are going to take Deqlan for an assesment by well know recommended, neurologist next week Tuesday so we can get his opinion on where Deqlan is on the spectrum. I also have a loonnnggg list of questions i would like to ask that i havent been able to get clear answers on this far.



For Egsample, one of the big differences with Aspergers compared to Austim Spectrum Disorder, is that you dont have a speech delay. Deqlan started talking by saying the alphabet at 2 and a half - and i know of lots of other neurotypical kids who only started talking at 2 and a half to? So is what we thought a language delay , really a language delay? Little Leaps seem to think he is Aspergers, and i do tend to agree , but would like a proffesional opinion. It will also be helpful to have the assesments done yearly , so we can compare and track Deqlans progress.



We do know , that Deqlan may have an " off" day, we do know that sometimes he doesnt react to strangers and we know that when in a strange place , he often asks us to " going home" so Deqlan may not do the things we know he can do with this Dr, that he does with us or at school.



So its very frustrating to think that he may not get the full picture of who Deqlan is in an hour, but we are going to try and go very prepared with times lines of his development, his strengths , and we are hoping to take some video clips to back up what we say he does , so he can see how amazing our Deqlan is , even if he doesnt want to be there on the day! So we will keep you posted!





And in other news.....we are moving ! Yip, we start on Sunday afternoon and will go through to next weekend, when we are hoping to be settled . We are excited to be able to use all our things again, to have our pets with us, but sad that we wont be with my mom and Dee in the evenings when Deqlan is at his best ! We will miss saying goodnight to them , and the routine we have become so familiar and comfortable with. We have felt so loved, so welcome, Mom and Dee have taken such good care of us . We are going to miss you so much and cant thank you enough for all you have done to help us, for loving us, for all the laughs, treats, support over the last 5 months! Luckily our new home is only a few minutes away and we still get to see you every day!



So we got a very very busy few days ahead of us!



We will probably set Deqlans 6 monthly check up with Dr De Jager for end February and have his ultra sound and blood and urine tests middle Feb, so please continue the prayers that Deqlan remains NED forever and always and that the tests results are normal and perfect in every way today, tommorow and always.







Please also pray for little Ylaria and Liam who fought neuroblastoma for many , many years, and were called home to Our Lord this past week. Please pray for them and their families.



Please also pray for Connor Gerber who is going to be starting a new trial



Please also pray for Nick who is in the thick of his neuroblastoma battle, searching for the next treatment that may stop it in its tracks.



And for all those around the world fighting cancer to be healed and for a cure to be found!







Have a great week everyone, thanks for checking in on us , for all your love, support and prayers

God Bless all our love

Mark Samm Deqlan Logan

BE STILL AND KNOW THAT I AM GOD