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Friday, July 29, 2011

happy, home and blessed




we are happy, we are home and we are so blessed

deqlan was an absolute star today - from the moment we woke him up right up to going into theatre he was in such a lovely mood

he only asked for "milky hot" or " milky spring" ( juice) once and was happy when we said we would get him some after theatre.

wehn we had our initial consult with dr venter in the week he told us that they use sevoflurane and not nitrous oxide- if you read or speak to other families with kids on the spectrum, there are some that will tell you nitrous oxide caused regression in their kids- even typing autism and anesthetic in google will lead you to many studies on this fact- some of their systems cant detox these gases and it add another injury to their bodies

when we met tghe anethetist today she says she uses nitrous oxide- this put us into a complete spin and wondering if we should go ahead with the procedure. she definitely had not heard about the concerns we had and was quite adiment that this was how she does things.

we had a few minutes to discuss this between nanna, mark and me - and i just asked god to guide us on the right decision- i was very close to saying lets go home,but i was filled with peace and calmness as was mark and nanna. we decided to chat to dr venter while waiting to go into theatre. deqlan was jumping on the hospital bed , we were hitting the balloon ( a hand glove blown up by one of the nurses) he was in wonderful spirits laughing and smiling. dr venter said that the nitrous oxide is the carrier for the anesthetic but sevoflurane would be what kept deqlan asleep. so we all decided to go for it

once dr venter came out to tell us all went well he told us they did not use any nitrous oxide in the end, which we are so happy about- we dont understand why it couldnt be done in the first place!!

he says deqlans tonsils were very bad and no more fibre in them -just filled with yucky stuff so it was the best decision to take them out now

deqlan woke up in recovery and immediately wanted out the bed. i ran to the nurse as i saw her carrying him out and he started getting upset. by the time we go to the room he was crying and couldnt get comfortable- eventually he settled on the bed with dad for ten minutes then woke up again. crying. more crying - but it was mostly from the anesthetic and not pain related. some cries were different - pain cries. dr anne his paed popped in to check on him to and megs also caeme to see our big boy. we were allowed to go round 1130€ after deqlan had some juice - by this time he was ready to get out of that room and immediately calmed down when we walked outside

he was very happy to be home amongst his own things and his own space and we were dleighted to see him finish a bowl of animal dhaped pasta and two glasses of spirte ( yes we allowing sprite as the fizzy coldrink helps heals the tonsils)

deqlans nose started bleeding and i saw some blood in his mouth- but nanna reassured me its from his nose ( from the pipe) not from his tonsils

nanna has spent the afternoon with me and we got deqlan to sleep comfortably after some pain meds

thank you so much nanna for all your never ending help and love and prayers and support and fun and hugs and smiles - we love you beyond any measure, you are truly our guardian angel on earth


thank you all for your prayers and messages and love, will keep you posted and ask you to please continue the prayers for no bleeding or infection and for minimal and manageable pain and a speedy recovery

thank you lord for guiding us and always taking the very best care of deqlan - there are not enough times and ways i could thank you for what you do for us you are a mighty loving merciful god

enjoy the weekend everyone god bless all our love
mark samm deqlan logan
rejoice in the lord always and again i say rejoice


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