We were at another doctor yesterday, one that we should have gone to a long time ago - he isnt just any doctor and has a great deal of understanding of what our Deqlan has gone through
You see, at 3 months of age, he was diagnosed with neuroblastoma - the primary tumor was located in the same region as Deqlans the sympathetic veins and arteries next to the kidney. And today, its over 40 years since his diagnoses - what a fantastic inspiration and story.
He also has a great understanding about autism, so knew what meds he could and cant give and understood all my concerns. It was great to hear him saying that Deqlans autism ' WAS REALLY NOT BAD AT ALL'
We waited over an hour to see him, and not once did Deqlan moan, he sat on my lap, listening to Beyonce and Old Macdonalds farm on his ipod and looking through his book. Granted, he also wasnt feeling well, but in the past ten minutes of waiting would be the absolute max before he started to get unhappy...i was so very proud of him
We saw another doctor, on Sunday evening who diagnosed tonsilitis, and gave a 3 day anti biotic - but this didnt touch the infection.
Tuesday night Deqlan was having temps of 39.5 every 3 - 4 hours and couldnt sleep cause he couldnt breathe through his very blocked up nose- i couldnt get into an ENT at such short notice, so off we went to try the fantastic Dr Kotze, who has been Mark and his family's doctor for many many years.
He told me that Deqlans tonsils were 'vrot' (very badly infected) and that his sinuses were so sticky and gunged up they were not going to be able to drain properly ...so onto another antibiotic, this one for 6 days and a much stronger one. I fear what this is going to do to Deqlans candida, but its more important to get the infection healed and sort the candida out later.
He had a rough night last night , tossing and turning, unable to breathe or drink - not wanting to eat - but eventually he settled and we didnt have a temp early this morning! So i think the meds are finally doing their job. He is a bit mis this morning, and not really wanting to drink/eat ...but we trust he will be much much better by tommorow
Deqlan has missed a week and a half of school, same, but we got to get him better first, hopefully by monday
This all means that we have had to potpone Deqlans 6 monthly scan and blood and urine collections, which were due to happen tommorow. Because he isnt feeling well, cause the blood count will be all over the show cause he is fighting this nasty infection and because we dont want the medication skewing the urine results either - so it will probably be in 2 weeks from now ... will keep you posted, but please do keep the prayers going for his recovery from these bugs and his check up to be totally normal and clear and for Deqlan to remain NED forever and always
Also wanted to say Congratulations to Tyler and Gaynor, Marks younger brother, on their pregnancy! They are expecting a baby boy at the end of September!
Also a hug congrats to Gill and Daryl on the news that Angel Declan will be getting a baby sister in October! So thrilled for you!!
Yes, another also, on Sunday Sam and the kids came past to say hello while we were at my moms house having lunch. About 10 mins after they arrived, someone burst through the door - DON!!! Sams husband! What a surprise, i wish i could have seen our faces! He is visiting for 2 weeks, so lovely to see him again!
The excitment is really building...tommorow is 21 days to go to kick off for world cup...IT IS NEARLY HERE, WE ARE READY!
Well, let me run and help Deqlan feel better and start all the meds he needs for the day!
Have a lovely day, thanks for the prayers , God Bless,
All our love
Mark Samm Deqlan Logan
BE STILL AND KNOW THAT I AM GOD
The adventures of Deqlan Ross Higgins,Our Gift from God, our neuroblastoma survivor, and now conquering autism one little leap at a time !
Oh Samm I am so sorry to hear that Deqlan is not feeling well - we are having the exact same problem with Hannah - we have been up since 2 this morning, I eventually also took her to the 24ER at Kloof and they have given her antibiotics but have referred us to an ENT, apparently Hannah's tonsils are so big you can't even see the back of her throat!
ReplyDeleteOur poor babies!
Sending plenty of get well wishes and kisses your way and hope your little man feels better soon.
xoxo
To our darling precious Deqlan,
ReplyDeleteWe are so very happy to know that you are finally overcoming your serious strep tonsillitis infection this past week. Whilst Nanna has been in bed with a similar bug, my prayers for you have been for Jesus to heal you completely and ease your discomfort and pain. Now, with the commencement of your second antibiotic, we see evidence that the major infection has been beaten, although at a small (and somewhat expected) “price”, since your treatment has awakened the “candida problem” again. Mamma and Dadda are experts at managing this problem, so in time, you will be soon be back to great health and your vibrant energy levels. We humbly ask Jesus to continue His healing of you, to clear out your sinuses, restore tonsillar integrity, give you wonderful and peaceful sleep at night, strengthen your immune system and that the Diflucan works better and more rapidly than it has ever done before. Your adorable laughter and beautiful smiles, your warm “kisses in the hand”, despite your discomfort and pain this past week, have still enraptured us (as always) and we just wanted to “kiss it all better” for you at every opportunity. If Nanna could and was able, I would gladly bear your discomfort for you, my precious Deqlan, but we must try to understand God’s ways. We love you immeasurably and pray you are soon back at school, in great health, enjoying being the “Star” at Little Leaps and continuing to take “giant leaps” there. God bless you always, and may He enfold you, Mamma and Dadda in His love, mercy and strength !
All our love,
Nanna and Grandpa